Holidays and Lupus

Posted · Add Comment

The holidays are stressful for almost all of us. We want it to be a warm and happy time but between extra family gatherings, the food preparation for those events, the gift-giving, and sometimes extra travel, the holiday season takes its toll. For those with lupus it can be even more challenging. Part of the […]

Join us at the Patient Conference!

Posted · Add Comment

The “Latest on Lupus” Patient Conference will be held on Saturday, December 16th at the UCLA Medical Center in the Tamkin Auditorium. Registration is now open and we invite you to join us as we learn more about living with lupus and the latest updates in research. REGISTER HERE Latest on Lupus Patient Conference December 16, 2017 […]

Caregiver Resources

Posted · Add Comment

I am a caregiver – Caring for myself   While caregiving may be rewarding, it can also be stressful, physically demanding, and isolating. One of the ways you can be at your best as a caregiver is by looking after yourself. Following these tips may be a good start to taking better care of yourself. […]

Exercise and Lupus

Posted · Add Comment

Exercise and movement are vitally important to maintaining good health. People living with lupus often suffer from fatigue and pain which can make it more difficult to exercise. It is important to find ways to still create opportunities for movement and exercise through the pain and fatigue. Try different forms of low-impact exercise such as […]

Questions to Ask My Doctor

Posted · Add Comment

  It is important to have a strong understanding of what you need to do as well as for what each medication and procedure are intended. One great way to gain more understanding is to ask questions about every part of your care. Below you will find a list of general health questions as well […]

“But you don’t look sick!”

Posted · Add Comment

Most people with lupus show few truly noticeable signs of the illness. Some may have a rash that comes and goes; a very few may suffer arthritis that is noticeable (this rarely happens early on), and those who are on steroids for several weeks may acquire a puffiness to their face that they could live […]

How to Manage Your Stress

Posted · Add Comment

How to Manage Your Stress Living with a chronic disease like lupus can be stressful. Too much stress can interfere with your daily life. Some people have found the following items helpful in reducing the stress in their lives. Check out and review the ideas that you are willing to try. Share your ideas with […]

Wellness Through Writing

Posted · Add Comment

As patients traverse the mysterious journey that is Lupus, and try to battle the war within their bodies, they may stumble and fall. Isolation and depression can quickly take over, worsening both mental and physical symptoms. Thankfully, there are many therapeutic and easily-accessible writing tools through which patients can liberate their thoughts. Today’s technology gives […]

Navigating Relationships with Lupus

Posted · Add Comment

Lupus effects our relationships with different areas of our life. Each relationship requires energy. Despite the requirement for energy, which we may perceive not to have, positive relationships reenergize. And contrary to popular belief, we have control over these relationships. Our Relationship with Our Self It’s essential to develop a relationship with our self. Lupus […]

Easing Joint and Muscle Pain in Lupus

Posted · Add Comment

Muscle aches (myalgia) and joint pain (arthralgia) are very common in lupus. About 2/3 of the people awith lupus diagnosis complain of muscles aches, and up to 90 percent struggle with joint pain. Here’s what you need to know: Your Muscles: Not all of your muscles are likely to be affected by lupus—those between the […]