Travel Tips: Have Pharmacy, Will Travel

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Nowadays, my brain seems to separate my life into two categories: 1) my “old” life (pre-diagnosis) and 2) my “new” life (post-diagnosis). The “old” Alexis tramped through airport security with the rest of humanity, lugging loaded bags and trying to endure fatigue. The “old” Alexis packed too much stuff, struggling to manage it all through […]

Tips for Dealing with Photosensitivity

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As we approach summer, the days are growing longer and warmer, and the sun here in Los Angeles is getting more intense.  While most people long for summer heat, those of us with lupus dread the sun-filled days.  Many people who have lupus deal with a symptom called photosensitivity, or sun sensitivity.  UV rays are […]

UPDATE ON LUPUS RESEARCH

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According to Pub Med, the repository of all medical articles written in the peer review literature, there were 3540 articles published on lupus in 2016 in recognized medical journals. Although they covered a variety of topics, this column focuses on three that this writer believes to be of particular interest. WE MIGHT HAVE LUPUS IN […]

Exercise Plans for People Living with Lupus

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Most of us are acutely aware of the need to keep mobile and supple, but factoring in exercise to our daily routines can sometimes be a struggle and more so when chronic pain and inflammation are making us feel unwell. Regular exercise is important if you have Lupus. It will help:  Fight insomnia or general […]

The Impact of Lupus LA’s Support Groups

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When I was diagnosed with lupus six years ago, I did not know anyone else with lupus living in LA.  It was a time of great change for me, as I had to make many big adjustments to my life in order to keep myself as healthy as possible.  I remember feeling like no one […]

The “Latest on Lupus” Patient Conference 6/3/17

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The “Latest on Lupus” Patient Conference will be held on Saturday, June 3rd at UC Irvine in Student Center Ballroom D. Registration is now open and we invite you to join us as we learn more about living with lupus and the latest updates in research. CLICK HERE TO REGISTER Latest on Lupus Patient Conference June 3, 2017 *10:30 […]

Mental and Physical Wellness as You Age

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Living with lupus presents special challenges as you age, and it is critical to look after your mental and physical wellbeing as you move into your later years. It’s important to understand how lupus affects the aging process, and how the disease can change as you age. Mental Health Those with lupus often experience symptoms of […]

Advocacy in Action

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On March 21, 2017, two members of the Lupus LA team went to lobby on Capitol Hill in Washington D.C.  The trip was organized by the Lupus Research Alliance (LRA), our research partner and included lupus groups from all over the country.  We were able to meet with a number of legislative aids from our […]