Caregiver Resources

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I am a caregiver – Caring for myself   While caregiving may be rewarding, it can also be stressful, physically demanding, and isolating. One of the ways you can be at your best as a caregiver is by looking after yourself. Following these tips may be a good start to taking better care of yourself. […]

Exercise and Lupus

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Exercise and movement are vitally important to maintaining good health. People living with lupus often suffer from fatigue and pain which can make it more difficult to exercise. It is important to find ways to still create opportunities for movement and exercise through the pain and fatigue. Try different forms of low-impact exercise such as […]

Questions to Ask My Doctor

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  It is important to have a strong understanding of what you need to do as well as for what each medication and procedure are intended. One great way to gain more understanding is to ask questions about every part of your care. Below you will find a list of general health questions as well […]

“But you don’t look sick!”

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Most people with lupus show few truly noticeable signs of the illness. Some may have a rash that comes and goes; a very few may suffer arthritis that is noticeable (this rarely happens early on), and those who are on steroids for several weeks may acquire a puffiness to their face that they could live […]

How to Manage Your Stress

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How to Manage Your Stress Living with a chronic disease like lupus can be stressful. Too much stress can interfere with your daily life. Some people have found the following items helpful in reducing the stress in their lives. Check out and review the ideas that you are willing to try. Share your ideas with […]

Wellness Through Writing

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As patients traverse the mysterious journey that is Lupus, and try to battle the war within their bodies, they may stumble and fall. Isolation and depression can quickly take over, worsening both mental and physical symptoms. Thankfully, there are many therapeutic and easily-accessible writing tools through which patients can liberate their thoughts. Today’s technology gives […]

Navigating Relationships with Lupus

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Lupus effects our relationships with different areas of our life. Each relationship requires energy. Despite the requirement for energy, which we may perceive not to have, positive relationships reenergize. And contrary to popular belief, we have control over these relationships. Our Relationship with Our Self It’s essential to develop a relationship with our self. Lupus […]

Easing Joint and Muscle Pain in Lupus

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Muscle aches (myalgia) and joint pain (arthralgia) are very common in lupus. About 2/3 of the people awith lupus diagnosis complain of muscles aches, and up to 90 percent struggle with joint pain. Here’s what you need to know: Your Muscles: Not all of your muscles are likely to be affected by lupus—those between the […]

What Lupus Patients Need to Know About Sunscreens and Sunblock

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For the last 20-30 years, Americans have become wiser about sun protection.  Unfortunately, the sunscreens that received FDA approval at that time did not provide full-spectrum coverage.  The emphasis was on protecting against ultraviolet B (the burning rays). For patients with lupus, protection against ultraviolet A is just as important.  Sun from the A spectrum […]

Asking for Help

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Most of us don’t like to ask for help. The more stressed we feel, the more likely we are say (or feel): “Oh, I’ll just do it myself!” These are generally the reason people think they can’t ask for help: They fear looking “weak.” Asking for help is human. It is not a sign of […]