“But you don’t look sick!”

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Most people with lupus show few truly noticeable signs of the illness. Some may have a rash that comes and goes; a very few may suffer arthritis that is noticeable (this rarely happens early on), and those who are on steroids for several weeks may acquire a puffiness to their face that they could live […]

How to Manage Your Stress

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How to Manage Your Stress Living with a chronic disease like lupus can be stressful. Too much stress can interfere with your daily life. Some people have found the following items helpful in reducing the stress in their lives. Check out and review the ideas that you are willing to try. Share your ideas with […]

Wellness Through Writing

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As patients traverse the mysterious journey that is Lupus, and try to battle the war within their bodies, they may stumble and fall. Isolation and depression can quickly take over, worsening both mental and physical symptoms. Thankfully, there are many therapeutic and easily-accessible writing tools through which patients can liberate their thoughts. Today’s technology gives […]

Navigating Relationships with Lupus

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Lupus effects our relationships with different areas of our life. Each relationship requires energy. Despite the requirement for energy, which we may perceive not to have, positive relationships reenergize. And contrary to popular belief, we have control over these relationships. Our Relationship with Our Self It’s essential to develop a relationship with our self. Lupus […]

Easing Joint and Muscle Pain in Lupus

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Muscle aches (myalgia) and joint pain (arthralgia) are very common in lupus. About 2/3 of the people awith lupus diagnosis complain of muscles aches, and up to 90 percent struggle with joint pain. Here’s what you need to know: Your Muscles: Not all of your muscles are likely to be affected by lupus—those between the […]

What Lupus Patients Need to Know About Sunscreens and Sunblock

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For the last 20-30 years, Americans have become wiser about sun protection.  Unfortunately, the sunscreens that received FDA approval at that time did not provide full-spectrum coverage.  The emphasis was on protecting against ultraviolet B (the burning rays). For patients with lupus, protection against ultraviolet A is just as important.  Sun from the A spectrum […]

Asking for Help

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Most of us don’t like to ask for help. The more stressed we feel, the more likely we are say (or feel): “Oh, I’ll just do it myself!” These are generally the reason people think they can’t ask for help: They fear looking “weak.” Asking for help is human. It is not a sign of […]

Travel Tips: Have Pharmacy, Will Travel

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Nowadays, my brain seems to separate my life into two categories: 1) my “old” life (pre-diagnosis) and 2) my “new” life (post-diagnosis). The “old” Alexis tramped through airport security with the rest of humanity, lugging loaded bags and trying to endure fatigue. The “old” Alexis packed too much stuff, struggling to manage it all through […]

Tips for Dealing with Photosensitivity

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As we approach summer, the days are growing longer and warmer, and the sun here in Los Angeles is getting more intense.  While most people long for summer heat, those of us with lupus dread the sun-filled days.  Many people who have lupus deal with a symptom called photosensitivity, or sun sensitivity.  UV rays are […]

UPDATE ON LUPUS RESEARCH

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According to Pub Med, the repository of all medical articles written in the peer review literature, there were 3540 articles published on lupus in 2016 in recognized medical journals. Although they covered a variety of topics, this column focuses on three that this writer believes to be of particular interest. WE MIGHT HAVE LUPUS IN […]