Travel Tips: Have Pharmacy, Will Travel

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Nowadays, my brain seems to separate my life into two categories: 1) my “old” life (pre-diagnosis) and 2) my “new” life (post-diagnosis). The “old” Alexis tramped through airport security with the rest of humanity, lugging loaded bags and trying to endure fatigue. The “old” Alexis packed too much stuff, struggling to manage it all through […]

I Don’t Know Why

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In 1997 lupus happened to me.  The honest truth is that I spent some time wondering why I had lupus.  I didn’t do anything to deserve it but I did review my life trying to figure out how it all went so wrong. This period of introspect about why this happened to me began to […]

Chronically Happy: Helpful Book by Lori Hartwell

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Lori Hartwell has dealt with chronic illness since she was two years old when she first suffered kidney failure. Since that time, she has survived over 40 various surgeries, 13 years of dialysis, and four kidney transplants as well as all types of health issues related to being on meds for so long. When she […]

Sugar, spice, and OH! that bag’s nice!

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Join us for an afternoon filled with fashion and fun, as we honor four impressive women. The event is centered on an exciting silent auction of 200 + designer handbags and will also feature ane exclusive fashion presentation by Salvatore Ferragamo. BUY TICKETS Click Here for more information

Holidays and Lupus

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The holidays are stressful for almost all of us. We want it to be a warm and happy time but between extra family gatherings, the food preparation for those events, the gift-giving, and sometimes extra travel, the holiday season takes its toll. For those with lupus it can be even more challenging. Part of the […]

“But You Don’t Look Sick!”

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Most people with lupus show few truly noticeable signs of the illness. Some may have a rash that comes and goes; a very few may suffer arthritis that is noticeable (this rarely happens early on), and those who are on steroids for several weeks may acquire a puffiness to their face that they could live […]

Join Us at the Patient Conference!

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The “Latest on Lupus” Patient Conference will be held on Saturday, October 15th at the UCLA Medical Center in the Tamkin Auditorium. Registration is now open and we invite you to join us as we learn more about living with lupus and the latest updates in research. CLICK HERE TO REGISTER October 15, 2016 8:30 AM – 2:00 […]

Get Lucky for Lupus LA

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Get Lucky for Lupus LA Celebrity Poker Tournament & Party Join us for our annual celebrity poker tournament and party! There is something for everyone at this fun event. Go “all-in” for lupus, purchase a one-of-a-kind item in our silent auction, and mix and mingle with some of your favorite celebrities! This year in honor […]

Immune Imbalance in Lupus

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As with most things in life, balance in the immune system is key to the prevention of disease – too little activity and one is prone to infections or the development of cancer; too much as in the case in Lupus, and a vicious cycle of inflammation and autoimmunity results.  So what is unique about […]

For Highly Sun-Sensitive Patients

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A few people (less than 5 percent) are extremely sensitive to ultraviolet light and need to take extra precautions. For most people, the reason for the heightened sensitivity is because they carry a specific type of antibody: the anti-SSA (Ro) antibody. Taking Some Simple Protective Steps People with this heightened sensitivity can do some helpful […]