By Alexis Markowitz
“The last thing I wanted to do last night was attend the support group. Working up the will to go is so hard…I always need to talk myself into it. In the mornings it’s a huge challenge to even get out of bed. Everything is sore and achy: my back, my neck, my shoulders, my hands. I am so tired and move at a snail’s pace. Every day, the same thing; I feel like I am going in circles. Have to schedule 10 hours a night now just for sleeping. So frustrated. And nauseous every day from my meds. Sometimes it’s all too much.
But…I push myself to go to the support group…and miraculously I feel better afterwards, mostly because I always meet a new patient who has just been diagnosed and needs a shoulder to lean on. Being in the dark about the diagnosis is so scary—I know I was terrified three years ago when I got the news, and being able to share my frustrations and fears with those who also go through this experience brought and continues to bring me solace. I just hope I can offer that same comfort to someone else.
And then last night, ‘Beauty Night’ actually ended up being very fun…a nice break from same old, same old. It gave us the chance to be silly and girly. It felt uplifting to do something positive, something lighthearted. Something that reminded us of how lupus doesn’t have to be a death sentence.”
The Lupus LA support group meets the second Wednesday of every month at 7 p.m. at Cedars-Sinai Medical Center’s Thalians Auditorium. Come to learn coping strategies, get advice, and talk with other people affected by lupus. [Note: There will be no support group in October. Please join us for our next meeting on Wednesday, November 12.)
Cedars-Sinai Medical Center
8730 Alden Drive, Plaza Level
Los Angeles, CA 90048
Complimentary parking: Lot 2 (Spielberg lot) on the corner of George Burns & Alden. Enter on George Burns.