April 10, 2022
The Your Story Our Fight® podcast gives a voice to lupus patients while continuing Lupus LA’s mission to raise lupus awareness worldwide. Hosted by the Chairman of Lupus LA and lupus patient himself, Adam Selkowitz, patients from all walks of life share stories about their unique lupus journeys. With a focus on inspiration and hope, Lupus LA’s podcast provides support and optimism to a patient community looking for assurance that they are not alone.
Adam Selkowitz is the founder and owner of Waterfall Films. He initially pursued an acting career, receiving a degree in Drama from Ithaca College. Adam then spent 6 years in New York, working mostly with an improv/sketch comedy group that he created called Spilt Milk. Spilt Milk performed across the country at comedy clubs, colleges and corporate events and was the official sketch comedy group at Caroline’s Comedy Club on Broadway for several years. Following his run with Spilt Milk, Adam moved to Los Angeles and switched from acting to production in creating Waterfall Films. The company’s original project, Greener Mountains, is an award-winning independent film available on Amazon Prime and other streaming services. Currently, the company has multiple projects in active development and has focused more recently on obtaining intellectual property rights around those projects.
In 1987 Adam was diagnosed with lupus and in 1999 he co-founded Lupus LA with Dr. Daniel Wallace and a small group of committed board members. Adam has led Lupus LA as Chairman of the Board for most of the last 20 years and has been at the forefront of the organization’s accomplishments, including raising over $10 million for lupus research, bringing a robust patient services program to Southern California and raising more global awareness for lupus than ever before. In addition, Adam is a member of the Cedars-Sinai Board of Governors and sits on their Leadership Council. He is also an Ambassador for Children’s Hospital Los Angeles.
The Your Story Our Fight Podcast is sponsored in part by:
Season THREE Episode TWO of the Your Story Our Fight® podcast welcomes Ashley Greene. Ashley Greene is the Founder and CEO of Bare Bodhi. Growing up in a salon with a hairdresser mother, Ashley developed a passion for beauty early on. While assisting one of the biggest names in the industry, Ashley was diagnosed with lupus, which prompted her to embark on a mission to promote both internal and external wellness. Her love for long nails and soft skin led her to create a patented flagship product, the fingerless exfoliating bath glove, designed specifically for women with long nails. This product enables clients to achieve supple, smooth skin without compromising their manicures. Ashley believes that washing your body with your own hands has a spiritual approach, and her products enable users to connect with and awaken their light within. With a focus on a holistic approach to beauty, Bare Bodhi is committed to promoting self-awareness and enabling individuals to serve their highest good. Ashley continues to innovate and develop products that empower and uplift, all while inspiring individuals to embrace their inner beauty.
Season THREE Episode ONE of the Your Story Our Fight® podcast welcomes Shamekka Marty. In 2012, Shamekka was diagnosed with Lupus, Scleroderma, Mixed Connective Tissue Disease, Reynaud’s, and Sjogren’s Syndrome. Shamekka seeks to motivate others who are in the same boat as her. She speaks on various public platforms, has a blog, a vlog , provides career counseling, and more to help Lupus patients in their journey. She currently resides in the Bay Area in California with her husband and three children.
Season TWO Episode TWENTY-FOUR of the Your Story Our Fight® podcast welcomes Emmitt Henderson III. Emmitt Henderson III was diagnosed with Systemic Lupus and Lupus Nephritis in 1995 but had symptoms going back to 1980. Through the years, he has endured major complications from heart, liver, kidney and lung failures, avascular necrosis that led to a shoulder and knee replacement. He had a clinical trial, bone marrow stem cell transplant; he was on oxygen due to his lung failure and had a kidney transplant due to kidney failure. He was also diagnosed with Rheumatoid Arthritis, Sjogrens Syndrome, MTCD as well as he suffered from having a stroke, shingles, gout, chronic fevers, diabetes and hypertension. In 2019, Emmitt was diagnosed with a brain disease, that medically retired him from his career. He decided to advocate for the same disease that debilitated him since 1995 and to talk about how his mental health got him through it all. He created his organization called Male Lupus Warriors Corp to spread Lupus and Mental Health awareness. He holds a safe space for men to meet and talk about their hardships in life, he encourages everyone to not be a victim to their illness. Emmitt did an advocacy campaign in Tanzania Africa in 2022 which included climbing Mt. Kilimanjaro. During his climb, he suffered high altitude pulmonary edema and ended up going into kidney failure for the second time in his life. He is now currently doing dialysis and on the transplant list for another kidney. During this time, he still maintains his advocacy by being active on social media and facilitating support groups.
Season TWO Episode TWENTY-THREE of the Your Story Our Fight® podcast welcomes Samantha Boothe. Samantha was diagnosed with lupus at the age of 14, and she has been sharing her journey with lupus online since 2010. Her main goal is to create relatable and informative content to empower anyone navigating life with chronic illness. When Samantha was diagnosed with lupus, she searched the internet for someone to relate to but had trouble finding any resources. This realization pushed Samantha to start sharing her story on YouTube. As time passed, Samantha’s YouTube channel grew, and she was surrounded by others who had similar experiences. Today, Samantha runs a blog and Instagram page called Heal With Samantha, where she shares the ups and downs of living with chronic illness. She hopes that through her content, she can help others feel less alone and provide them with the support and resources they need to thrive in their own life.
Season TWO Episode TWENTY-TWO of the Your Story Our Fight® podcast welcomes Olga Lucia Torres. A few years after law school, Olga was diagnosed with lupus and eventually the doctors found she had 4 other autoimmune diseases. Olga’s health has never stopped her from following her dreams and attending Cornell University and Georgetown University Law School on scholarships. In August of 2000, Olga went to the hospital for routine medical care. She was supposed to be discharged in 2 to 3 days. Instead Olga ended up in a coma and with an iatrogenic brain injury. It took six years of inpatient and outpatient rehabilitation, but Olga managed to volunteer again doing health care law. Olga was inspired to return to school in 2012 where she found the Narrative Medicine program at Columbia University and in 2014, received a Master’s in Science. She now teaches narrative medicine at the CUNY School of Medicine.
Season TWO Episode TWENTY-ONE of the Your Story Our Fight® podcast welcomes Melissa Walker. Melissa is a Medical Writer, with a biomedical research background focusing on traumatic spinal cord injury and traumatic brain injury. She earned her Ph.D. in Medical Neuroscience from Indiana University School of Medicine before returning to UCLA department of Neurosurgery, for postdoctoral research. She was diagnosed with Graves’ thyroid disease in 2002, and has had Hashimoto’s since 2003, after radioiodine ablation therapy. She was diagnosed with Systemic Lupus and Rheumatoid Arthritis in 2005, and Sjogren’s in 2016.
Tune in Tuesday, April 11th at 11:00am PST! | Season TWO Episode TWENTY of the Your Story Our Fight® podcast welcomes Stacey Uberstine. Stacey graduated from California State University Northridge in 1990 with a bachelor of science degree in Health Administration with a computer science minor. One of her most notable jobs was helping to establish the Industrial Care Center which is operational at San Pedro Hospital. In 1993 Stacey transitioned into the insurance industry where she owned and operated her own State farm Agency for over a decade. Stacey was diagnosed with lupus in 1994. She stays abreast of the disease and all related medical breakthroughs and advances in research. Stacey has been an active donor and Board member of Lupus LA. She has a passion for patient advocacy within the lupus and breast cancer communities. Stacey is an avid sports fan, and actually met her husband through her work at State Farm. Sports seems to be a family affair, as her husband is a prominent sports attorney who has represented some of the most iconic figures in professional sports. Her passion for sports was passed on to her twin boys, Grant and Tyler. Grant was an avid athlete in high school, participating in lacrosse, baseball and swimming. Tyler’s passion for baseball took him to Northwestern University, where he earned a spot in the team’s starting rotation. He was later drafted by the Boston Red Sox. Stacey resides in Manhattan Beach, where she can be seen taking strolls along the beach. She is an avid reader and spends a considerable amount of time supporting philanthropic causes close to her heart related to lupus and breast cancer.
Season TWO Episode NINETEEN of the Your Story Our Fight® podcast welcomes Kellie Martin. Kellie began acting at the age of seven. She is most fondly remembered for playing Becca Thacher on the groundbreaking ABC family drama Life Goes On, for which she received an Emmy nomination. And, her portrayal of Lucy Knight, a precocious med student who met an untimely demise after two seasons on NBC’s ER, haunts viewers to this day. Kellie has been a been a regular on numerous series including, The Guest Book, Army Wives, Mystery Woman, and on Hallmark’s Hailey Dean, where she served as Executive Producer. Her television and feature film highlights include Troop Beverly Hills, A Goofy Movie, Malibu’s Most Wanted, Grey’s Anatomy, Private Practice, and Mad Men. She also served as leading lady for Hallmark’s beloved holiday movies, The Christmas Ornament and Christmas in Montana as well as rom-com favorites, Smooch, I Married Who?, and Hello It’s Me.
In 1999, Kellie lost her nineteen year old sister, Heather, to lupus. So, Kellie took on a new role, one that she continues passionately to this day: national spokesperson for the Autoimmune Association. She works to raise awareness, lobbies Congress, speaks, and meets personally with patients and their families. Kellie is a Yale graduate with a degree in Art History. She co-authored a novel, Madam, which was published by Penguin in 2014. She’s currently writing on a new novel.
Most recently, Kellie has been working with her Life Goes On co-star, Chad Lowe and All American show runner, Nkechi Okoro Carroll to reboot Life Goes On with Warner Brothers. She just directed Mistletoe in Montana for Lifetime and has been recording a new podcast with Chad Lowe entitled The Big Break. She lives on a suburban farm in California with her husband, Keith, daughters, Maggie (15), Olivia (5) and a bunch of goats, pigs, and horses.
Season TWO Episode EIGHTEEN of the Your Story Our Fight® podcast welcomes J. Christopher Reed. Christopher Reed was diagnosed with lupus in 1990 at the age of 16. Despite several serious attacks to his organ system, he earned a bachelor’s degree with honors from the Georgia State University and a law degree from Tulane University. He managed his first job out of law school juggling lupus nephritis and horrible chemotherapy treatments. After an 18 year career in litigation, Christopher has devoted his life to public health and health policy. He is the Policy, Advocacy, and Mobilization Manager for SisterLove, Inc. an organization that is devoted to eradicating challenges to reproductive health and HIV/AIDS. He is a contractor for the American College of Rheumatology, the University of Alabama, and the Lupus Research Alliance on three separate projects devoted to increasing minority participation in clinical trials. He is also an advocate, moderator, and writer for Lupus.net. He now serves as a Support Group Facilitator, Advocacy Chair, and Project Manager for the Lupus Foundation of America-Georgia Chapter. His support group, designed specifically for men, is the first of its kind in the United States. He was appointment by the state and then chaired the Georgia Council on Lupus Education and Awareness (Council) an advisory council created and funded by the state of Georgia. As Chair he established the Georgia Lupus Collaborative, a 60 person multidisciplinary advisory group and think tank charged with improving the lives of people with lupus in Georgia. He was one of twelve panelists chosen to speak at the historical Lupus Patient Focused Drug Development meeting in 2017.
Season TWO Episode SEVENTEEN of the Your Story Our Fight® podcast welcomes Alma Torres. Alma is in her twelfth year working in education. Alma was diagnosed with lupus in the summer of 2009. In 2014, her younger sister was diagnosed with lupus. She went from lupus patient to lupus patient/care giver. In 2020, Alma’s sister lost her battle with lupus. Since her passing, Alma has struggled with staying healthy, but no matter how she physically feels, she is thankful she gets to experience another day.
Season TWO Episode SIXTEEN of the Your Story Our Fight® podcast welcomes Valerie Gilkey and Marcella Lewis. Valerie Gilkey is a 55 year old woman suffering with SLE. She was diagnosed at the early age of 19. Despite doctors advising her of the dangers to her life as well as her child’s, with faith she gave birth to one daughter, Marcella Lewis. Even though it was a challenge, Marcella was trained from the early age of 4 in all disciplines of dance, and is now a world renowned dancer. Today, Valerie still gets her strength to fight so that she can continue to see her daughter grace the stages around the world.
Season TWO Episode FIFTEEN of the Your Story Our Fight® podcast welcomes Zuriel Gibson. Zuriel received her Lupus diagnosis and was told that she wouldn’t live past the age of twenty-four. After many bouts with depression, pain, addictions and hospital stays, she became discontent and decided to use her pain to propel her into purpose. As a lupus survivor and advocate, she has become a much sought after speaker. Her message, “There is purpose in your pain”, has been shared on numerous media outlets such as The Kingdom Broadcast Network, Destiny Channel TV, Something Good is About to Happen, The Ladies Room Radio Broadcast and more.
Season TWO Episode FOURTEEN of the Your Story Our Fight® podcast welcomes Model, Influencer, Activist and Lupus Patient, Cambria Francesca.
Season TWO Episode THIRTEEN of the Your Story Our Fight® podcast welcomes Judith Mills. Judith Mills is a Biomedical scientist, a TEDx speaker, an adjunct professor, lupus & disability advocate. In October 1999, Judith’s lupus diagnosis was a relief after 3 years of constant doctors visits with symptoms of fatigue, loss of appetite, body aches, and hair loss. It shattered her dreams of being a beauty pageant queen, a modern dancer, and the next Flo-Jo. Judith has been featured on online platforms such as Blackman Can, Rizzar, Scoop it, and others. She is the recipient of the 2012 Black Street “Black Celebration” Award winner for Non-Profit as well as K-hitz & affiliates for recognizing selfless dedication & contributions to the betterment of Ghanaians & immigrants in the USA award. She has also received Uptown Honors nomination and 2017 3rd Annual AEUSA winner of Best Community Award of the Year.
Season TWO Episode TWELVE of the Your Story Our Fight® podcast welcomes Lexi Hamburger. Lexi Hamburger is a high school student and lupus patient. Lexi was diagnosed with lupus two years ago. For the past year, she has been sharing her experiences navigating high school with a chronic illness. In her free time, she enjoys spending time with her family and friends, skiing, and golfing.
Season TWO Episode ELEVEN of the Your Story Our Fight® podcast welcomes Abstract Artist, Visual Communicator and Lupus Patient, Fatema Siddiki. Fatema Siddiki is an Abstract Artist and a visual communicator. After being diagnosed with Lupus and Scleroderma in 2007, her life took a miraculous turn. Art was there for Fatema when no one was, it helped her overcome her worst days when she was fighting against Lupus. Art soon became her therapy and purpose to fight.
Season TWO Episode TEN of the Your Story Our Fight® podcast welcomes Raven Lexime. Raven Lexime is a lupus patient currently living and working in the Inland Empire. Raven has worked retail most her life and transition into property management in late 2003. When Raven is not working, she enjoys traveling and spending time with close family and friends.
Season 2 Episode 9 of the Your Story Our Fight® podcast welcomes certified correctional officer, photographer and lupus patient, Teri T. McIntyre-Scott alongside businesswoman, magazine owner and lupus supporter, Demetria Buie!
Season 2 Episode 8 of the Your Story Our Fight® podcast welcomes Lupus LA board member and legendary producer, Lauren Shuler Donner! Lauren has produced many films, including Pretty in Pink, Free Willy, St Elmo’s Fire, Dave, You’ve Got Mail, Secret Life of Bees, and nine X-men movies. She was also an Executive Producer on another seven films and five tv shows including “Legion.” Lauren has been honored with a star on Hollywood Blvd. and has received her honorary Doctorate from Boston University.
Season TWO Episode SEVEN of the Your Story Our Fight® podcast welcomes Nzingha Stewart. Nzingha Stewart attended NYU’s Gallatin School and upon graduation went on to shoot over a hundred music videos for artists like Common, Eve, Jay-Z, and 50 Cent breaking down barriers for women of color in the music video world along the way.
An equally in-demand commercial director, Nzingha has also filmed clips for ESPN, McDonald’s, and Coors Light among others. Having recently directed episodes of Little Fires Everywhere, Black Monday, Greys Anatomy, A Million Little Things, Good Girls, Scandal, How To Get Away With Murder, the Netflix hit feature film Tall Girl, and Shonda Rhimes upcoming series Inventing Anna, she has also proven herself as a writer having written With This Ring and The Tenth Date (Lifetime/ A+E Networks) which she also directed. Both movies were ratings hits for the network and With This Ring went on to be nominated for three NAACP awards and won the Women In Film Award for Best Television Movie.
Stewart is currently shooting and executive producing Netflix’s From Scratch, based on Tembi Locke’s best-selling memoir, produced by Hello Sunshine. In 2022 she is set to Executive Produce Daisy Jones and the Six for Amazon and Hello Sunshine. Recently she sold her co-written script, Bad Ass Biker Chicks of Marrakech to Wayfarer for which she is also set to direct. Next up on the directing front is the feature film Life in Motion, a biopic about powerhouse prima ballerina Misty Copeland.
Season TWO Episode SIX of the Your Story Our Fight® podcast welcomes Krissy Stephenson. Krissy has been living with chronic illnesses for over 12 years. Her full time job is managing her health and household with a supportive husband, two boys and 2 dogs.
Season TWO Episode FIVE of the Your Story Our Fight® podcast welcomes Lauren Fenty. Lauren’s Lupus journey began in 2013. She has experience in Healthcare primarily focused on Patient Advocacy and Clinical informatics. Her passion is to promote awareness for Lupus.
Season TWO Episode FOUR of the Your Story Our Fight® podcast welcomes sisters Joann and Jennifer Zehenni. Joann Zehenni is a 17-year-old entrepreneur and the founder and CEO of Gemini Beauty. Having family members with lupus, and having borderline lupus herself, Joann was inspired to develop Gemini Beauty to accommodate those in need of clean, natural skincare products. A native Angeleno, Joann will be attending Loyola Marymount University in August 2022 while running her business and advocating for lupus awareness! Jennifer Zehenni is a lupus patient, and the founder and director of TeachPlayLearn, an educational concierge for the whole family.
Season TWO Episode THREE of the Your Story Our Fight® podcast welcomes Abby Mooring and Tina Allen. Abby and Tina are from North Carolina. Abby moved across the country to Los Angeles last August to continue her modeling and acting careers. Abby has worked on editorials for New York Fashion Week, London Fashion Week, and multiple commercial, TV, film and voice acting roles. Tina Allen has been a Lupus Patient for seven years. Abby is working to advocate for her mother and bring more awareness to the Lupus Community.
Season TWO Episode TWO of the Your Story Our Fight® podcast welcomes Jordana Sandler Manzano. Jordana Sandler Manzano, a trained chef, has worked in restaurants and event planning, volunteers for other organizations, and is raising three children with her husband, David. She enjoys putting her culinary degree to work baking challah and other sweet treats for family and friends, and recently began her own business, Snugs & Sweets. Jordana has been involved in many areas of the Marlene Meyerson JCC Manhattan for over a decade, and has been a member of the board of directors since 2013. Currently she is chair of the ReelAbilities Film Festival Advisory Council.
Season TWO Episode ONE of the Your Story Our Fight® podcast welcomes Elizabeth and Mia SantaCruz. Elizabeth became a passionate advocate for raising Lupus Awareness after her daughter was diagnosed with lupus at the young age of 8. As a parent and caregiver, she was invited by to participate as a Lupus Advocate at the Annual Advocacy Meeting and Hill Day in Washington D.C. to meet with Congressional members and their staff to discuss the support for Lupus research.
Episode TWENTY-SIX of the Your Story Our Fight® podcast welcomes Nell Teare. Nell Teare is a Lupus patient, award winning writer, producer, actress and director of over 120 projects including more than a dozen foreign language dubs for Netflix.
Episode TWENTY-FIVE of the Your Story Our Fight® podcast welcomes Emily Suñez. Emily Suñez is a Lupus patient, artist and author of her new book, The Healing Journal.
Episode TWENTY-FOUR of the Your Story Our Fight® podcast welcomes Lola Kark. Lola Kark is a Lupus patient, Founder of Lupus Kids and High School student.
Episode TWENTY-THREE of the Your Story Our Fight® podcast welcomes Jacqueline Stewart. Jacqueline Stewart is a Lupus patient, photographer and student.
Episode TWENTY-TWO of the Your Story Our Fight® podcast welcomes Cristy Powers. Cristy Powers is a Lupus patient, Lupus advocate, Holistic Health Coach and Author.
Episode TWENTY-ONE of the Your Story Our Fight® podcast welcomes Vee Desai Gomez. Vee Desai Gomez is a Lupus patient, Lupus advocate, Owner and Lead Instructor at Beach Yoga SoCal.
Episode TWENTY of the Your Story Our Fight® podcast welcomes Vania Dzib. Vania Dzib is a Lupus patient, lupus advocate and teacher.
Episode NINETEEN of the Your Story Our Fight® podcast welcomes Sagree Naiker. Sagree Naiker is a Lupus patient, registered nurse and author of her autobiographical book The Show Must Go On.
Episode EIGHTEEN of the Your Story Our Fight® podcast welcomes Tricia McCrone. Tricia McCrone is a Lupus patient, television producer and publicist for entertainer Wayne Newton.
Episode SEVENTEEN of the Your Story Our Fight® podcast welcomes Lindsay Cafritz, a LupusLA board member, lupus advocate and freelance writer.
Episode SIXTEEN of the Your Story Our Fight® podcast welcomes LaToya Johnson and Julius White. LaToya Johnson is a Lupus patient and fitness influencer along with her partner, Julius White.
Episode FIFTEEN of the Your Story Our Fight® podcast welcomes Nancy Utley, a lupus patient and the former Chairman of Searchlight Pictures.
Episode FOURTEEN of the Your Story Our Fight® podcast welcomes Liz Morasso, a lupus patient and clinical social worker.
Episode THIRTEEN of the Your Story Our Fight® podcast welcomes Andrea Gershwin, a lupus patient and psychotherapist.
Episode TWELVE of the Your Story Our Fight® podcast welcomes Kelly Rotstan , a lupus patient and pharmaceutical scientist.
Episode ELEVEN of the Your Story Our Fight® podcast welcomes Yvette Carrillo , a lupus patient, periodontist, and implant surgeon.
Episode TEN of the Your Story Our Fight® podcast welcomes Kimmy Delahunty, a lupus patient and mental health advocate.
Episode NINE of the Your Story Our Fight® podcast welcomes Kristen Renton, a lupus patient, actress, and Lupus LA Celebrity Ambassador.
Episode EIGHT of the Your Story Our Fight® podcast welcomes Marisa Zeppieri, a lupus patient, author, influencer, and lupus advocate.
Episode SEVEN of the Your Story Our Fight® podcast welcomes Amanda Palley, a lupus patient and Senior Vice President of Current Programs at CBS.
Episode SIX of the Your Story Our Fight® podcast welcomes Lorena Gordon, a lupus patient, writer and director of the award winning short film At Last.
Episode FIVE of the Your Story Our Fight® podcast welcomes Maurissa Tancharoen, a lupus patient, writer, producer and showrunner of ABC’s Agents of Shield.
Episode FOUR of the Your Story Our Fight® podcast welcomes Peter Morley, a lupus patient, patient advocate and healthcare activist.
Episode THREE of the Your Story Our Fight® podcast welcomes Monica Blied Phd, a lupus patient and California Licensed Clinical Psychologist.
Shannon is a newly-diagnosed lupus patient who was born and raised in San Diego, California, and has been involved in athletics and team sports since early childhood. Shannon moved to Los Angeles in 1996, and graduated from UCLA in 1999. Shannon had a successful career in the finance industry before taking a break from the business world so that she could focus on raising her three daughters. Shannon has combined her loves of exercise science, sports, fitness, and mentoring, and has obtained her Certified Personal Trainer designation from the National Academy of Sports Medicine, one of the most rigorous and well-respected governing agencies in the fitness industry. In addition, Shannon is a CrossFit Level 2 Trainer and also holds credentials from the National Academy of Sports Medicine as both a Corrective Exercise Specialist and a Fitness Nutrition Specialist, giving her a unique skill set and the ability to provide clients with additional levels of expertise.
Episode ONE of the Your Story Our Fight® podcast welcomes Juana Mata, a lupus patient and lupus advocate to talk about her life as a patient and her work with Looms 4 Lupus, a popular support group within the lupus community.
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The Your Story Our Fight Podcast is sponsored in part by: