Living with lupus can be challenging, especially when it comes to maintaining healthy relationships. Lupus flares can arise at any time, making it difficult to follow through on plans and activities. According to a recent survey on Lupus and Relationships by Lupus LA, 73% of lupus patients in a relationship report that a lupus flare has affected or created a strain in the relationship.

This strain can be compounded by the fact that lupus is an invisible illness, meaning that symptoms are not always outwardly visible. As a result, people with lupus often face specific challenges in their personal relationships. A staggering 76% of lupus patients report that they felt family, friends, or work associates did not believe them when discussing non-visible lupus symptoms, and 78% reported that this directly impacted their emotional wellbeing.

Living with lupus often means adjusting plans due to the unpredictable nature of the disease. In fact, 80.7% of lupus patients report that they often need to change or adjust plans due to their condition. This can be frustrating for patients and their loved ones, especially when it comes to making and keeping plans.

Overall, 76% of lupus patients report that a lack of visible symptoms impacted their relationships. The lack of visible symptoms can lead to misunderstandings and miscommunications, creating a strain in relationships.

It is important for people with lupus to have a strong support system, including supportive family members, friends, and partners who can understand the challenges of living with an invisible illness. If you or a loved one is struggling to navigate the challenges of lupus and a support system, consider seeking support from a therapist or joining one of our Global Lupus Support Groups! 

Remember, you are not alone. If you have lupus and you are struggling to find resources and support, please reach out to our team at info@lupusla.org to connect with our Virtual Care Coordinator for assistance navigating resources, referrals and more. 

More Survey Results: 

• 73% of lupus patients in a relationship report that a lupus flare has affected or created a strain in the relationship. 
• 76% of lupus patients report that a lack of visible symptoms impacted their relationships. 
• People with invisible illnesses, like lupus, often face specific challenges in their workplaces, communities – and even in their personal relationships. 76% of lupus patients report that family, friends, or work associates did not believe them when discussing non-visible lupus symptoms.
• 78% reported that this directly impacted their emotional wellbeing. 
• 80.7% of lupus patients report that they often need to change or adjust plans due to the unpredictable nature of lupus.