LUPUS LA SOCIAL MEDIA COMMUNITY STANDARDS
Social media is a way to express yourself, create meaningful connections and to foster a sense of community. While Lupus LA supports these sentiments, we also operate with integrity and we expect those who engage on our platforms to do the same. Therefore, we have a few community standards in place in order to keep our social platforms honest, safe and ethical.
In order to empower free expression while maintaining a safe and respectful environment, we remove, block or hide followers and comments that are harmful to Lupus LA, employees or community. These includes:
In an effort to prevent deceptive content that can harm the organization, its employees or its community, Lupus LA removes comments that intentionally deceive, willfully misrepresent or otherwise mislead our community and the public.
We want to create a positive, healthy and supportive environment for the Lupus LA community. We want to be more than just a group that has integrity; we want to be a force for good. When making posts, please keep the following things in mind:
We request that you do not request or provide medical advice on our social media channels. While encouraging individuals to seek medical advice for any issues or questions is always encouraged and welcome, seeking or giving a diagnosis over the internet is dangerous. We are not doctors and we do not know every person’s medical history. Individuals with medical questions should seek out medical help from qualified professionals, We will remove inappropriate comments and remove, block or hide followers who violate this rule.
Please do not seek to solicit funds or donation requests on our social media without our prior, written approval. Additionally, self-promotion, spam and irrelevant links are not permitted. We will remove, block or hide followers and comments which violate this rule.
Violence, Incitement or Self-harm
We strive to prevent potential offline harm that may be related to content or comments on Lupus LA’s social platforms. We understand that people commonly express disdain or disagreement by calling for violence. This includes threatening Lupus LA, its employees, other community members or themselves (self-harm).
We remove followers and comments that reference aspirational or conditional threats directed toward Lupus LA, its employees or anyone in the community
If we believe there is a genuine risk of physical harm or direct threats to public or personal safety, we will report such claims to law enforcement. We do our best to distinguish between exaggerated language and credible threats, but ultimately, everyone is responsible for their own communications, actions and well-being.
We, Lupus LA, registered with Office of the Secretary of State of the State of California, operate the following pages (“Social-Media-Pages”) on the following social media networks (“Social Media”):
Facebook: facebook.com or mobile app by Facebook Inc., 1601 S. California Ave, Palo Alto, CA 94304, USA or Facebook Ireland Ltd., 4 Grand Canal Square, Dublin 2, Ireland, please refer to privacy notice https://www.facebook.com/policy.php, opt-out: https://www.facebook.com/ads/preferences or https://www.facebook.com/settings;
Twitter: twitter.com or mobile app by Twitter Inc., 1355 Market Street, Suite 900, San Francisco, CA 94103, USA, please also refer to privacy notice https://twitter.com/en/privacy, opt-out: https://twitter.com/personalization;
LinkedIn: linkedin.com or linkedin mobile app by LinkedIn Corporation, Legal Department – Privacy, 1000 W. Maude Ave, Sunnyvale, CA 94085, USA / LinkedIn Ireland Unlimited Company, Wilton Plaza, Wilton Place, Dublin 2, Ireland, please also refer to https://www.linkedin.com/legal/privacy-policy / https://www.linkedin.com/psettings/privacy
YouTube: youtube.com or mobile app by Google LLC 1600, Amphitheatre Pkwy, Mountain View, CA 94043, USA, Google Ireland Ltd., Gordon House Barrow St Dublin 4 Ireland, please also refer to privacy notice: https://policies.google.com/privacy, settings: https://www.youtube.com/account, https://policies.google.com/privacy#infochoices
Instagram: instagram.com or mobile app by Facebook Ireland Ltd., 4 Grand Canal Square, Dublin 2, Ireland, please refer to privacy notice http://instagram.com/about/legal/privacy/ ; opt-out: https://www.instagram.com/accounts/privacy_and_security/
1. Controller for Data Processing
When you visit our Social-Media-Pages, personal data is processed both by us and by the responsible social media provider as the responsible party.
2. Transmission of Data; Data Processing outside the EU
If you are located in the EU, note that when using Facebook, Instagram, Twitter, LinkedIn or YouTube, personal data may also be processed outside the European Union.
For users who have their usual residence in the European Economic Area or Switzerland, Google Ireland Limited is the data controller for your data, unless otherwise stated in the privacy notices of a particular service. Google Ireland Limited is therefore the company affiliated with Google that is responsible for processing your data and complying with applicable data protection laws. You can also find more information in Google’s privacy notice: https://www.google.com/policies/privacy/.
3. Data Processing and Legal Basis
With our Social-Media-Pages, we can communicate with you and provide you with information. We may receive further data from you through your comments, shared images, messages, and reactions, which we then process to answer or communicate with you. If you use Social Media on several end devices, a cross-device analysis of the data can take place.
If you are located in the EU, data processing may take place with your explicit consent (Art. 6 (1) a GDPR), the processing is necessary for the performance of a contract or in order to take steps prior to entering into a contract (Art. 6 (1) b GDPR), or on the basis of our legitimate interests, e.g., in improving the services and presentation to the outside world (Art. 6 (1) f GDPR).
Use of Page Insights and Cookies on Facebook
On our Facebook pages the Page Insights function to process statistical data from users is used - see also the agreement at: https://www.facebook.com/legal/terms/page_controller_addendum. This involves the processing of data in the form of so-called ‘page insights’ by Lupus LA and Facebook, which are described in more detail at https://www.facebook.com/business/a/page/page-insights. Evaluations and statistics are generated in the form of page insights from the usage data of the Facebook pages, which support us in improving our marketing activities and our external presence. We may also learn about users and their behavior who interact with or use our Facebook Pages to display relevant content and develop features that may be of interest to them. These page statistics show us, for example, which people from certain target groups interact most with our Facebook Page or which content on the Facebook Page was visited, shared or liked when and how often. When classifying people into target groups, demographic data or data about the location of a person is also included in order to place targeted advertisements with these people. If you use Facebook on several end devices, a cross-device analysis of the data can take place. The data collected in this way is statistically processed and usually anonymous, i.e. we cannot establish any reference to the individual person.
Information on Page Insights and the processing of personal data can be found, for example, in Facebook's data protection statement at https://www.facebook.com/policy.php or at https://www.facebook.com/business/a/page/page-insights.
Display of Content and Cookies when using Twitter
When you use Twitter, even if you’re just looking at Tweets, Twitter receives some personal information from you like the type of device you are using and your IP address. Twitter uses this information for things like showing you more relevant Tweets, people to follow, events, and ads, as described in detail in the Twitter privacy notice. This may also involve providing your payment information to Twitter to use their paid services.
Data processing and Cookies when using LinkedIn
On our LinkedIn pages LinkedIn and Lupus LA may use your personal data for careers and recruiting services (see also the data processing agreement: https://legal.linkedin.com/dpa). Data on how you use LinkedIn may be shared with us and certain third parties as described in detail here: https://www.linkedin.com/legal/privacy-policy#share
Data processing via YouTube and Google Account
When you have an existing YouTube or Google account your account data will be connected and processed. If you do not wish this to happen, you should log out from your existing YouTube or Google account. For further information please refer to https://policies.google.com/privacy.
Instagram Insights and Cookies on Instagram
When using Instagram and you have an account there, Instagram can assign your activities to your profiles there. On our Instagram pages the Instagram Insights function to process statistical data from users is used (see also for Facebook that is connected to the provider of Instagram the agreement at: https://www.facebook.com/legal/terms/page_controller_addendum). This involves the processing of data in the form of so-called ‘Instagram Insights’ by Instagram and Lupus LA, described in more detail at
Evaluations and statistics are generated in the form of Instagram Insights from the usage data of the Instagram pages, which support us in improving our marketing activities and our external presence. Instagram Insights lets us learn more about our users and the performance of our website. For this purpose, Instagram provides us with statistics on specific posts and stories created to find out how users interacted with them. When classifying people into target groups, demographic data or data about the location of a person is also included in order to place targeted advertisements with these people. If you use Instagram on several end devices, a cross-device analysis of the data can take place. The data collected in this way is statistically processed and usually anonymous, i.e. we cannot establish any reference to the individual person.
4. Your Rights and Objections, Contact Details
If you are located in the EU, in accordance with the statutory provisions, you, as the data subject, have the right to receive information about your data stored by the controller free of charge at any time. In addition, you can assert your rights to correction, deletion or restriction of the processing or the right to object at any time. This also applies to your right to receive your data in a structured, current and machine-readable format or (if applicable) to request the transmission to another person responsible (data portability).
If you have provided personal data on the basis of a consent, you can withdraw the consent at any time for the future. As explained above, these aforementioned rights must be exercised directly through Facebook, Twitter, LinkedIn, YouTube or Instagram, respectively.
You or the person affected also have the right to lodge a complaint with a supervisory authority at your choice (for example: https://www.datenschutz-bayern.de/vorstell/impressum.html). An overview of the Data Protection Authorities may be found here: https://www.bfdi.bund.de/DE/Infothek/Anschriften_Links/anschriften_links-node.html or http://ec.europa.eu/newsroom/article29/item-detail.cfm?item_id=612080.
As a Facebook user, you can at any time influence how your user behavior is recorded when you visit Facebook pages. To do this, you can manage the settings for advertising preferences in your Facebook account or at https://www.facebook.com/ads/preferences, or the Facebook settings in your account or at https://www.facebook.com/settings. Facebook also provides opportunities to contact or exercise rights at https://www.facebook.com/help/contact/2061665240770586 or https://www.facebook.com/help/contact/308592359910928.
As a Twitter user, you can at any time influence how your user behavior is recorded when you visit Twitter pages. To do this, you can manage the settings for advertising preferences in your Twitter account or under https://twitter.com/personalization or https://twitter.com/de/privacy#overlay-chapter2.10.1 or without an account under https://pscp.tv/account/settings. Twitter also provides opportunities to contact or exercise rights at https://help.twitter.com/forms/privacy.
As a LinkedIn user, you can at any time influence how your user behavior is recorded when you visit LinkedIn pages. To do this, you can manage the advertising and general settings in your account under https://www.linkedin.com/psettings/privacy. LinkedIn also provides opportunities to contact and exercise rights under https://www.linkedin.com/legal/privacy-policy, https://www.linkedin.com/legal/cookie-policy and for individual messages online via https://www.linkedin.com/help/linkedin/ask/TSO-DPO.
As a YouTube user, you can at any time influence how your user behavior is recorded when you visit YouTube pages. To do this, you can manage the advertising and general settings in your account under https://www.youtube.com/account,
https://policies.google.com/privacy#infochoices or https://myaccount.google.com/privacycheckup. YouTube/Google also provides opportunities to contact (for example via: https://support.google.com/) and exercise rights under https://support.google.com/policies/troubleshooter/7575787?hl=en-GB.
As an Instagram user, you can at any time influence how your user behavior is recorded when you visit Instagram pages. To do this, you can manage the settings for advertising preferences in your Instagram account or under https://www.instagram.com/accounts/privacy_and_security/. Instagram also provides opportunities to contact or exercise rights at https://help.instagram.com/contact/1845713985721890 or http://instagram.com/about/legal/privacy/.