Privacy Policy

Lupus LA has developed this privacy policy out of respect for the privacy of visitors to our website. This policy describes the personal data we collect, use, and disclose about individuals who visit and/or interact with this website, purchase or inquire about any of our products or services.

Whenever you visit our website, we will collect some information from you automatically simply by you visiting and navigating through the site, and some voluntarily when you submit information using a form on the website, enroll in or subscribe to our newsletter or marketing communications, request information, apply to volunteer, register for events, or use any of the other interactive portions of our website. Through this website, we will collect information that can identify you and/or your activity.

Additionally, whenever you communicate, interact, or do business with us online, we will be collecting personal data from you or about you in the course of our interactions or dealings with you. Because of our mission, we may collect information about the Lupus diagnosis of our Website visitors, or such diagnoses of the friends and family of visitors. We do not, however, collect from or about any Website visitor any identification numbers, driver’s license numbers, financial account numbers, or other medical information.

Collection of Personal Data
Lupus LA collects the following categories of personal data about visitors to our website:

  • Personal Identifiers & Contact Information, including, but not limited to, first name, last name, email address, phone number, and any personal data you provide to us through the “Volunteer,” “Lupus LA GO Team,” or “Lupus LA Mailing List” forms on our website.
  • Lupus Diagnosis.
  • Commercial Transactional Data, including information regarding products, purchasing history, and donation history.
  • Volunteer Information, including past volunteer experience, skills you can use in your volunteering, languages spoken, availability to volunteer, and event information when you want to host an event.
  • Internet Network Activity, including, but not limited to, the date and time of your visit to this website; webpages visited; links clicked on the website; browser ID; browser type; device ID; operating system; form information downloaded; domain name from which our site was accessed; search history; and cookies.
  • Mobile Device Data, information collected when you navigate, access or use and of our websites via mobile device, including device type, software type.
  • Geolocation Data, including, but not limited to, your IP Address and/or GPS location, latitude, and longitude.

Purposes for Which We Will Use Your Personal Data

  • To allow us to register you for events and volunteer opportunities and to properly manage the participant lists.
  • To send you promotional information, such as newsletters. (Each email newsletter will provide information on how to unsubscribe from future mailings.)
  • To notify you of new information or services that may be of interest to you.
  • To process, complete, and maintain records on transactions.
  • To retain your selection for text opt in/opt out to ensure community members who opted out are not sent any text messages.
  • To respond to consumer inquiries, including requests for information, community member support online, or phone calls.
  • To review the effectiveness of our marketing programs and analyze other general demographic trends.
  • To improve user experience on our website.
  • To understand the demographics of our website visitors.
  • To debug, identify, and repair errors that impair existing intended functionality of the website.
  • To contact you by email, telephone calls, mail, SMS, or other equivalent forms of communication regarding updates or informative communications related to the functionalities, services, or other information you requested or asked Lupus LA to provide to you.
  • To detect security incidents.
  • To protect against malicious or illegal activity and prosecute those responsible.
  • To enable Lupus LA to establish, exercise, or defend legal claims or to respond to the order of a court acting in its judicial capacity.

Disclosure of Data to Vendors and Third Parties
Lupus LA discloses your personal data to the following vendors and third parties when you use our website; please review their privacy policies to understand how they use your personal data.

Additionally, we are obliged to disclose your personal data if required to do so by law or government agency, for the purpose of defending or prosecuting legal claims, and to protect in an emergency the health and safety of our customers/community members or the general public.

Google Analytics : Lupus LA uses various marketing tools that help us create a better user experience for people visiting our site. These tools allow us to look at aggregated data such as scrolling patterns and clicks, as well as allow us to run tests to determine which pages result in the best actions. Google Analytics’ Privacy Policy is located here.

Google Analytics Opt-Out. To provide website visitors the ability to prevent their data from being used by Google Analytics, Google has developed the Google Analytics opt-out browser add-on for the Google Analytics JavaScript (ga.js, analytics.js, dc.js). If you want to opt-out, download and install the add-on for your web browser. The Google Analytics opt-out add-on is designed to be compatible with Chrome, Internet Explorer 11, Safari, Firefox, and Opera. In order to function, the opt-out add-on must be able to load and execute properly on your browser. For Internet Explorer, 3rd-party cookies must be enabled. Learn more about the opt-out and how to properly install the browser add-on here.

Mailchimp : Lupus LA uses Mailchimp as its email service provider. Through MailChimp, we collect contact information, distribute our newsletter, and track actions you take that assist us in measuring the performance of the website and newsletters.

Our newsletters contain tracking pixels. This pixel is embedded in emails and allows us to analyze the success of our newsletters. Because of these tracking pixels, we can see if and when you open an email, which links within the email you click, and the pages you visit on our website. This behavior is not passed to third parties. All data submitted at the time of subscription to our newsletter is stored on MailChimp’s servers. You may access MailChimp’s privacy policy here. At any time, you may be removed from our newsletter list by clicking on the unsubscribe button provided in each email.

WooCommerce : Lupus LA uses WooCommerce to service payments for our products and services. WooCommerce collects personal data such as your name, email address, address, and payment information. All data entered into Woo Commerce is stored on WooCommerce’s site. Click here for their Privacy Policy. All payments processed through WooCommerce use PayPal Payflow. This service stores your name, amount of your purchase, and payment details on their site. PayPal Payflow is governed by PayPal’s Privacy Policy. Upon making a purchase through WooCommerce, you will receive email confirmations to the email address you provide during your purchase.

Stripe : Stripe collects personal data such as your name, email address, zip code, and payment information. You may access Stripe's Privacy Policy here. Upon making a purchase via Stripe, you will receive email confirmations to the email address you provide during your purchase.

PayPal : PayPal collects personal data such as your name, email address, address, and payment information. You may access PayPal's Privacy Policy here.

vFairs : Lupus LA hosts an Annual Global Symposium. If you purchase tickets for the Annual Global Symposium, you will enter personal data into our system for processing this transaction. Your payment will be processed by one of our payment processors, as described above. Information you provide at the time of purchase will be used for login access. Emails regarding your purchase may be transmitted through vFairs, which does not store your personal data. We communicate with conference attendees via email through vFairs, which stores the product you purchased and your personal contact information on their servers. You may access vFairs’ privacy policy here. When you virtually attend our Annual Global Symposium, you will be presented with the opportunity to “scan” your badge with our sponsors in a virtual exhibit hall. If you voluntarily choose to allow a third party to scan your badge, you will be transmitting your name, company, and email address.

Zoom : Lupus LA hosts regular online events, courses, workshops, seminars, and summits (“Webinars”). If you purchase tickets for one of these Webinars, you will enter personal data into our system for processing this transaction or registration. Emails regarding your registration may be transmitted through Zoom, which does not store your personal data. We communicate with Webinar attendees via email through Zoom. You may access Zoom's privacy policy here.

Survey Monkey : Periodically, we may invite you to complete a voluntary survey. Some surveys are completed through Survey Monkey. Survey responses can be submitted anonymously and only your IP address is stored. You may voluntarily enter your name and email address. All data submitted through Survey Monkey are stored on its servers and is subject to the SurveyMonkey privacy policy, which is located here.

Google Forms : Periodically, we may invite you to complete a voluntary survey. Some surveys are completed through Google Forms. Survey responses can be submitted anonymously and only your IP address is stored. You may voluntarily enter your name and email address. All data submitted through Google Forms are stored on its servers and is subject to the Google privacy policy, which is located here.

Charity Engine : We offer multiple ways to contact Lupus LA, including contact forms and emails. If at any time, you attempt to contact us through a contact form, the information you provide will be stored on our servers. If you submit a form or email us, we use Charity Engine to process all these inquiries and track responses. All related information is stored on the servers at Charity Engine, in accordance with the Charity Engine privacy policy, which is located here.

YouTube : We use YouTube to offer videos on our website. YouTube’s privacy practices are addressed in the Google privacy policy, which is located here.

Protection of Your Personal Data
We use reasonable and appropriate measures to safeguard the information you submitted to us through the Website or that we received about you through the Website, including:

  • We keep automatically collected data and voluntarily collected data separate at all times.
  • We use internal encryption on all data stores that house voluntarily captured data.
  • We use commercially reasonable tools and techniques to protect against unauthorized access to our systems.
  • We restrict access to private information to those who need such access in the course of their duties for us.

We have put in place procedures to deal with any suspected personal data breach and will notify you and any applicable regulator of a breach where we are legally required to do so.

Business Transfers
In the event we sell or transfer a particular portion of our business assets, consumer information may be one of the business assets transferred as part of the transaction. If substantially all of our assets are acquired, consumer information may be transferred as part of the acquisition.

You will be notified before any such transactions and be provided with an opportunity to opt out of your data being sold or request for your data to be deleted.

EEA and UK Residents Data Protection Rights
Lupus LA would like to make sure you are fully aware of all of your data protection rights. The following rights only apply to residents of the European Economic Areas and the UK:

The right to access – You have the right to request Lupus LA for copies of your personal data. We may charge you a small fee for this service.

The right to rectification – You have the right to request that Lupus LA correct any information you believe is inaccurate. You also have the right to request Lupus LA to complete the information you believe is incomplete.

The right to erasure – You have the right to request that Lupus LA erase your personal data, under certain conditions.

The right to restrict processing – You have the right to request that Lupus LA restrict the processing of your personal data, under certain conditions.

The right to object to processing – You have the right to object to Lupus LA’s processing of your personal data, under certain conditions.

The right to data portability – You have the right to request that Lupus LA transfer the data that we have collected to another organization, or directly to you, under certain conditions.

If you make a request, we have one month to respond to you. If you would like to exercise any of these rights, please contact us at our email:
Call us at: 310.657.5667
Or write to us: 1600 Ventura Blvd., Suite 520, Encino, CA 91436

Use of Cookies and Other Tracking Technologies
Cookies are small files that a website may transfer to a user’s computer that reside there for either the duration of the browsing session (session cookies) or on a permanent, until deleted, basis (persistent cookies) that may be used to identify a user, a user’s machine, or a user’s behavior. We make use of cookies under the following circumstances and for the following reasons:

  • Provide you with services available through the website and to enable you to use some of its features
  • Authenticate users and prevent fraudulent use of user accounts
  • Identify if users have accepted the use of cookies on the website
  • Compile data about website traffic and how users use the website to offer a better website experience
  • Understand and save visitor preferences for future visits, such as remembering your login details or language preference, to provide you with a more personal experience and to avoid you having to re-enter your preferences every time you use the website
  • Track your browsing habits to enable us to show advertising which is more likely to be of interest to you, including advertising by third parties on our website

There are a number of different types of cookies, however, our website uses:

  • Functionality – We use these cookies so that we recognize you on our website and remember your previously selected preferences. These could include what language you prefer and location you are in. A mix of first-party and third-party cookies are used.
  • Advertising – We use these cookies to collect information about your visit to our website, the content you viewed, the links you followed and information about your browser, device, and your IP address. We sometimes share some limited aspects of this data with third parties for advertising purposes. We may also share online data collected through cookies with our advertising partners. This means that when you visit another website, you may be shown advertising based on your browsing patterns on our website.

You may delete cookies from your web browser at any time or block cookies on your equipment, but this may affect the functioning of or even block the Website. You can prevent saving of cookies (disable and delete them) by changing your browser settings accordingly at any time. It is possible that some functions will not be available on our website when use of cookies is deactivated. Check the settings of your browser. Below you can find some guidance:

Do Not Track (DNT) is a privacy preference that users can set if they do not want web services to collect information about their online activity. We do not respond to DNT signals.

External links
Our website contain links to other sites. We are not responsible for the privacy practices or the content of such websites. Our privacy policy applies only to our website. To help ensure the protection of your privacy, we recommend that you review the privacy policy of any site you visit via a link from our website.

Children Under the Age of 16
Our website is not intended for children under 16 years of age. No one under age 16 may provide any personal data on the website. We do not knowingly collect personal data from children under 16. If you are under 16, do not use or provide any information on our website. If we learn we have collected or received personal data from a child under 16 without verification of parental consent, we will delete that information. If you believe we might have any information from or about a child under 16, please contact us at the email address below.

Consent to Terms and Conditions
By using this website, you consent to all terms and conditions expressed in this Privacy Policy.

Changes to Our Privacy Policy
As our services evolve and we perceive the need or desirability of using information collected in other ways, we may from time to time amend this Privacy Policy. We encourage you to check our website frequently to see the current Privacy Policy in effect and any changes that may have been made to them. If we make material changes to this Privacy Policy, we will post the revised Privacy Policy and the revised effective date on this website. Please check back here periodically or contact us at the address listed at the end of this Privacy Policy.

Questions About the Policy
This website is owned and operated by Lupus LA. If you have any questions about this Privacy Policy, please contact us at info@lupuslaw.org or call 310.657.5667.

**This policy was last updated June 15, 2023.