Hair loss is a common – and often distressing – symptom for those living with lupus. Whether it’s temporary thinning from inflammation or medication, or more permanent hair loss from discoid lupus lesions, the emotional toll is real. At Lupus LA, we understand how deeply hair loss can affect identity and self-esteem.
Lupus is an autoimmune disease that causes systemic inflammation. This inflammation can affect the skin and scalp, leading to a type of hair thinning known as “lupus hair.” In more severe cases, lesions caused by discoid lupus can lead to scarring and permanent hair loss.
In addition to lupus itself, certain medications — such as steroids and immunosuppressants — may contribute to hair thinning or delayed regrowth. Hormonal fluctuations, stress, and co-occurring autoimmune diseases like Hashimoto’s can also play a role.
To support our community, we’ve partnered with Tami Wong, founder of Hair Loss Pride, who has lived with alopecia for nearly 30 years and has worn wigs for over a decade. Tami shares expert tips in the videos below to help lupus patients feel empowered and informed about wigs as a hair loss solution.
Key tips from Tami Wong:
Tami shares a complete guide on how to take six key head measurements to ensure your wig fits securely and comfortably. These include:
“Losing our hair as women is tough. It’s part of our identity. But you’re not alone in this.” — Tami Wong
Hair loss due to lupus is more common than many realize. Nearly 40% of women will experience noticeable hair loss by age 50. Whether it’s due to medication, inflammation, or autoimmune overlap — support and solutions are available.
To connect with our community and access wig resources or patient services, visit lupusla.org/supportgroups or email us at info@lupusla.org.
