Lupus News

Policy & Advocacy

Letter Encourages Support of the Medicare Part D Non-Interference Provision http://nof.org/files/nof/public/content/file/4846/upload/1230.pdf

You can help make sure every member of Congress from every state hears how they can help lupus patients by becoming a virtual advocate. Use LRI’s automated Legislative Action Center to email your federal legislators and ask them to help find a cure for Lupus.

The Medicare Access and CHIP Reauthorization Act was approved by the Senate 92-8. https://ehrintelligence.com/2015/04/15/senate-passes-sgr-icd-10-implementation-delays-unlikely/

Lupus Advocacy in Action!

Lupus LA, along with the LRI National Coalition, traveled to DC in March 2016 and advocated on the Hill. One of our main asks was the creation of a Lupus Medical Research Program through the Department of Defense. We are pleased to share that a new $5 million Lupus Medical Research Program was approved by House Subcommittee. This is a powerful step forward! http://lupusresearchinstitute.org/lupus-news/2016/05/13/new-5-million-lupus-medical-research-program-approved-house-subcommittee

Lupus LA Fellowship Brings Expertise to Inland Empire

Increase Awareness, Get a Proclamation in Your City

Drug Development & Clinical Trials

Delivering a new lupus drug to market
http://www.kmworld.com/Articles/News/KM-In-Practice/Delivering-a-new-lupus-drug-to-market-101955.aspx

Drugs That Regulate Metabolism May Treat Lupus
http://cen.acs.org/articles/93/i8/Drugs-Regulate-Metabolism-Treat-Lupus.html

Researchers say the key to reversing lupus may be a combination of two existing drugs
http://www.healthline.com/health-news/scientists-cure-lupus-in-mice-021115#1

Study to examine computer-based decision aids to help in lupus therapy
http://medicalxpress.com/news/2015-03-computer-based-decision-aids-lupus-therapy.html

Team uncovers marvel molecule that could lead to treatments for inflammatory diseases
http://medicalxpress.com/news/2015-02-team-uncovers-marvel-molecule-treatments.html

CDC Lupus Self-Management Project

The CDC is looking for opinions about a new tool to help people with lupus manage their condition at home. On June 6th and 7th, 2016 focus groups will be conducted to explore the new tool. Also, telephone interviews will be conducted from May 23rd-June 3rd, 2016.
If you are interested in participating this study: call (310) 295-3046 or click http://ow.ly/oOFc300lDfc

Understanding Molecular Diversity of Lupus Could Personalize Treatment Approach, Improve Clinical Trials http://lupusnewstoday.com/2016/04/05/landmark-study-may-pave-the-way-for-personalized-treatment-of-lupus-and-other-complex-autoimmune-diseases/?utm_source=LUP%20NEws%20E-mail%20List&utm_campaign=13ca6bc313-RSS_WEEKLY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_50dac6e56f-13ca6bc313-71453941

Lupus Management & Patient Care

16 Things People in Chronic Pain Want You to Know
http://www.thepainrelieffoundation.com/patient-perspectives/want-you-to-know/

Mom’s Open Letter to Handicap Parking Shamer Reminds Us That ‘Ghost Illnesses’ Deserve Respect
https://www.yahoo.com/health/moms-open-letter-to-handicap-parking-shamer-116388141197.html

Add nature, art and religion to life’s best anti-inflammatories
http://medicalxpress.com/news/2015-02-nature-art-religion-life-anti-inflammatories.html

20 Ways Lupus Affects the Body, this article helps illustrate the many ways that lupus can affect the body
http://www.healthline.com/health/lupus/effects-on-body

Study examines role of vitamin D in SLE disease activity
http://www.medpagetoday.com/Rheumatology/Lupus/51030

Exercise Helps Battle Depression in Rheumatic Diseases
http://www.medpagetoday.com/Rheumatology/GeneralRheumatology/50032

Biomarkers for Predicting Lupus Flares Identified http://www.niams.nih.gov/News_and_Events/Spotlight_on_Research/2015/lupus_flares.asp

Rapid-response immune cells are fully prepared before invasion strikes http://niams.nih.gov/News_and_Events/Press_Releases/2016/5_5.asp