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PRESS CONTACT

For Press inquiries, please contact: Phil Kong, Lupus LA Events Manager at (310) 657-5667 or at philk@lupusla.org or Carolyn Zweifel, pr etc. at (323) 7658444 or at czweifel@pr-etc.com

NEWS

Learn about the latest news and happenings with lupus with our In The News section. We have a number of reports, articles, and photos for you to reference.

Lupus LA featured on CNBC: CNBC LINK
Lupus LA talks ACA repeal and lupus in the Huffington Post: HUFFPOST LINK
Lupus LA video about healthcare reform, lupus patients, and patient advocacy: Lupus LA Video
For easier use, we have separated our In The News section into three categories:
Lupus News – Find out the latest on clinical trials, medical breakthroughs and advocacy. Also included in this section are articles on living with lupus and additional lupus resources.
Lupus LA News – Check out the latest on what Lupus LA is doing. In this section you will find information on our Ambassadors, Lupus LA programs, and important initiatives.
Event News – Our events always bring out the stars and shed important light on lupus awareness. See all the latest press coverage that our events and our celebrity supporters generate.

Lupus News

Breaking News

Lupus LA talks ACA repeal on the Huffington Post

What is lupus and why does Selena Gomez take chemotherapy drugs to treat it?

Selena Gomez talks with Ellen Degeneres about having Lupus

Telemundo discusses lupus and Selena Gomez (en espanol)

Selena Gomez shares that she has lupus

HolaDoctor.com discusses lupus and Selena Gomez (en espanol)

Policy & Advocacy

Letter Encourages Support of the Medicare Part D Non-Interference Provision http://nof.org/files/nof/public/content/file/4846/upload/1230.pdf

You can help make sure every member of Congress from every state hears how they can help lupus patients by becoming a virtual advocate.  Use LRI’s automated Legislative Action Center to email your federal legislators and ask them to help find a cure for Lupus.

The Medicare Access and CHIP Reauthorization Act was approved by the Senate 92-8. https://ehrintelligence.com/2015/04/15/senate-passes-sgr-icd-10-implementation-delays-unlikely/

Lupus Advocacy in Action!

Lupus LA, along with the LRI National Coalition, traveled to DC in March 2016 and advocated on the Hill. One of our main asks was the creation of a Lupus Medical Research Program through the Department of Defense. We are pleased to share that a new $5 million Lupus Medical Research Program was approved by House Subcommittee. This is a powerful step forward! http://lupusresearchinstitute.org/lupus-news/2016/05/13/new-5-million-lupus-medical-research-program-approved-house-subcommittee 

Lupus LA Fellowship Brings Expertise to Inland Empire

Increase Awareness, Get a Proclamation in Your City

Drug Development & Clinical Trials

Delivering a new lupus drug to market
http://www.kmworld.com/Articles/News/KM-In-Practice/Delivering-a-new-lupus-drug-to-market-101955.aspx

Drugs That Regulate Metabolism May Treat Lupus
http://cen.acs.org/articles/93/i8/Drugs-Regulate-Metabolism-Treat-Lupus.html

Researchers say the key to reversing lupus may be a combination of two existing drugs
http://www.healthline.com/health-news/scientists-cure-lupus-in-mice-021115#1

Study to examine computer-based decision aids to help in lupus therapy
http://medicalxpress.com/news/2015-03-computer-based-decision-aids-lupus-therapy.html

Team uncovers marvel molecule that could lead to treatments for inflammatory diseases
http://medicalxpress.com/news/2015-02-team-uncovers-marvel-molecule-treatments.html

CDC Lupus Self-Management Project

The CDC is looking for opinions about a new tool to help people with lupus manage their condition at home. On June 6th and 7th, 2016 focus groups will be conducted to explore the new tool. Also, telephone interviews will be conducted from May 23rd-June 3rd, 2016.
If you are interested in participating this study: call (310) 295-3046 or click  http://ow.ly/oOFc300lDfc

Understanding Molecular Diversity of Lupus Could Personalize Treatment Approach, Improve Clinical Trials  http://lupusnewstoday.com/2016/04/05/landmark-study-may-pave-the-way-for-personalized-treatment-of-lupus-and-other-complex-autoimmune-diseases/?utm_source=LUP%20NEws%20E-mail%20List&utm_campaign=13ca6bc313-RSS_WEEKLY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_50dac6e56f-13ca6bc313-71453941

Lupus Management & Patient Care

16 Things People in Chronic Pain Want You to Know
http://www.thepainrelieffoundation.com/patient-perspectives/want-you-to-know/

Mom’s Open Letter to Handicap Parking Shamer Reminds Us That ‘Ghost Illnesses’ Deserve Respect
https://www.yahoo.com/health/moms-open-letter-to-handicap-parking-shamer-116388141197.html

Add nature, art and religion to life’s best anti-inflammatories
http://medicalxpress.com/news/2015-02-nature-art-religion-life-anti-inflammatories.html

20 Ways Lupus Affects the Body, this article helps illustrate the many ways that lupus can affect the body
http://www.healthline.com/health/lupus/effects-on-body

Study examines role of vitamin D in SLE disease activity
http://www.medpagetoday.com/Rheumatology/Lupus/51030

Exercise Helps Battle Depression in Rheumatic Diseases
http://www.medpagetoday.com/Rheumatology/GeneralRheumatology/50032

Biomarkers for Predicting Lupus Flares Identified http://www.niams.nih.gov/News_and_Events/Spotlight_on_Research/2015/lupus_flares.asp

Rapid-response immune cells are fully prepared before invasion strikes http://niams.nih.gov/News_and_Events/Press_Releases/2016/5_5.asp

Lupus LA News

Lupus LA featured on CNBC

Lupus LA talks ACA repeal on Huffington Post

Lupus LA Video about healthcare reform, lupus patients, and patient advocacy

HUFFPOST LIVE: Toni Braxton Opens Up About The ‘Toughest Part’ Of Living With Lupus

Lupus Heroes: Actor Michael B. Jordan and his mom, Donna Jordan

Lupus LA Heroes: Dr. C. Andrew Schroeder

Lupus LA Heroes: Michelle & Alan Kaye

Lupus LA Heroes: Elle Jones

Lupus LA Heroes: Nicole Fogel

Lupus LA Heroes: The Mata Sisters: Juana and Estela

Toni Braxton Reveals She Has Lupus: ‘This Is What Lupus Looks Like’

Lupus LA’s Orange Ball Raises Over Half a Million to Fight Lupus

DWTS Karina Smirnoff raises awareness at Lupus LA Orange Ball

Stars Spotlight Lupus Awareness at Lupus LA Orange Ball

Upcoming Lupus LA Orange Ball Making Headlines with Hollywood Attendees

Chosen by U.S. Government for Lupus Multicultural Pilot Study

We Remember With Love Morrie Golick, Devoted Father, Dedicated Founder (1910-2012)

ABC-TV Features Lupus LA Council Member Toni Braxton with Popular Lupus Blogger on National Talk Show

Follow the Fashion to Life Without Lupus!

New Lupus LA Entertainment Industry Board Members Make Headlines

Congress Listened, Lupus Voices Heard!

Lupus LA Raises $64,000 at LA Marathon for CA Lupus Patients

Nick Cannon Helping to Raise Awareness of Lupus

LRI Helps Shine TV Spotlight on Lupus

Coping with Chronic Illness Webinar

Lady Gaga recognized for her activism work for many causes including lupus.

A Tale of Two Cities: S.L.E. Lupus Foundation Goes Cross-Country to Accelerate Lupus Research

Toni Braxton joins Lupus LA Executive Council

2011: A Year of Progress and Hope

Eden Sassoon on Health, Family and Hosting Holiday Shop for a Cause

9th Annual Hollywood Bag Ladies Luncheon Raises Quarter of a Million! View photos

Hollywood Stars and Top Designers Contribute Handbags for Lupus LA From Society News LA

Child’s crisis brings Dogg house closer

Venus Williams’ Withdrawal from U.S. Open Highlights Need for Women to Take Autoimmune Disease Symptoms Seriously

10-year Old Lupus Sufferer and Snoop Dogg’s Daughter Cori B Launches First Album

Hollywood Supports Orange Ball 2011

Team Life Without Lupus Takes on the LA Marathon and 5K!

Out We Reach—To All Angelinos with Lupus

Lupus Initiative Story Bank—Tell Your Lupus Story!

Lupus LA Chairman Adam Selkowitz Shares His Story of Lupus and 5K-Race Inspiration in The Huffington Post

Lupus Research Institute Awards Wide-Ranging Research Grants to Drive Next Generation of Scientific Discovery in Lupus

Tools for Managing Your Lupus – WEBINAR

Lupus LA Events In The News